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Living As Well As Possible with Intractable Pain

Updated: Nov 17

Living with intractable pain challenges every part of life. It affects how you move, think, and feel. Finding ways to live well despite this pain is essential. This post shares practical insights and support strategies to help manage daily life with persistent pain.


using pillows to support painful limbs

Understanding Intractable Pain


Intractable pain is pain that does not improve with standard treatments. It lasts for months or years and can be severe. Unlike typical pain that signals injury or illness, intractable pain often continues without clear cause or relief.


This type of pain can come from conditions like nerve damage, arthritis, or complex regional pain syndrome. It may also result from surgeries or illnesses that affect the nervous system.


Living with intractable pain means facing physical discomfort and emotional challenges. It can lead to frustration, anxiety, and depression. Understanding the nature of this pain is the first step toward managing it.

The Impact of Intractable Pain on Daily Life


Pain that never goes away changes how you live. Simple tasks like getting dressed, cooking, or walking can become difficult. Sleep may be disrupted, leading to fatigue and irritability.

Social life often suffers. People with chronic pain may withdraw from friends and family because they feel misunderstood or too tired to participate. Work and hobbies might also be affected, causing a loss of income and/or joy.

Recognizing these impacts helps in seeking the right support. It also reminds us that managing pain is about more than just the physical symptoms.


Practical Strategies to Manage Pain


Managing intractable pain requires a combination of approaches. No single method works for everyone, so it’s important to find what fits your needs.


Medication and Medical Treatments


Doctors may prescribe medications such as pain relievers, anti-inflammatories, or nerve blockers. Some patients benefit from physical therapy, acupuncture, or nerve stimulation.


It’s important to work closely with healthcare providers to adjust treatments as needed. Keep track of what helps and what doesn’t, and communicate openly about side effects.


Be prepared for pain interventions to decrease in effectiveness over time. This is a common attribute of intractable pain - that a treatment will work for awhile and then decrease in effectiveness. There are several theories about why this happens, but what is important is to be prepared with a variety of interventions to use as needed.


Lifestyle Adjustments


Small changes in daily habits can make a big difference:


  • Pacing activities: Break tasks into smaller steps and rest between them to avoid overexertion.


  • Regular gentle exercise: Activities like walking, swimming, or yoga can improve strength and reduce stiffness. Adjust your activity level to your pain level with fewer repetitions or the amount of time, but try to get up and move every day.


  • Healthy diet: Eating nutritious foods supports overall health and may reduce inflammation. Limiting the amount of sugar and processed foods that you consume, as well as nightshades (i.e., tomatoes, eggplant), will reduce inflammation.


  • Sleep hygiene: Establish a calming bedtime routine and keep a consistent sleep schedule. Getting up at the same time and going to bed at the same time helps your body create a healthy sleep rhythm. Turning off screens, dimming the lights, and creating a cool, comfortable space will help you get to sleep. If painsomnia keeps you awake more than a couple nights a week, talk with your doctor about whether medication, medical cannabis, or an over-the-counter supplement would be best.


Keeping Active with Intractable Pain


When you are living with chronic pain it is tempting to withdraw from daily activities, even the ones that bring you joy. Distraction is an excellent pain management tool. You may have to experiment with new activities that put less strain on parts of your body, but trying new things will have a positive affect on your mental health and mindset.


Leave a comment and let me know what activities are bringing you joy these days and help distract you from pain.

Creating a Comfortable Environment at Home


Your living space can influence how you feel. Making your home comfortable and accessible helps reduce pain triggers.


Consider these tips:


  • Use supportive chairs and mattresses to ease pressure on joints.


  • Keep frequently used items within easy reach to avoid unnecessary strain.


  • Maintain good lighting to prevent accidents and reduce eye strain.


  • Incorporate calming colors and soft textures to create a soothing atmosphere.


    Small changes can improve your quality of life and make daily tasks less painful.


Finding Meaning and Joy Despite Pain


Living well with intractable pain means finding ways to enjoy life. This might include:


  • Pursuing hobbies that bring pleasure and can be adapted to your energy levels.


  • Setting realistic goals to celebrate small achievements.


  • Practicing gratitude to focus on positive aspects of life.


  • Maintaining spiritual practices that are meaningful for you.


  • Engaging in social activities that feel manageable.

    Pain may limit some activities, but it doesn’t have to define your life. Finding purpose and joy supports emotional well-being.


Final Thoughts on Living with Intractable Pain


Managing intractable pain is a journey that involves physical, emotional, and social aspects. Combining medical treatments with lifestyle changes, mental health care, and support networks creates a strong foundation.


Remember that each person’s experience is unique. Experiment with different strategies and seek help when needed. Living well with pain is possible with patience, persistence, and the right resources.


If you or someone you know struggles with intractable pain, reach out and see if working with a Pain Therapist will help. Taking small steps today can lead to a better quality of life tomorrow.

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